zdmeЗдоровье мегаполисаCity Healthcare2713-2617ГБУ «НИИОЗММ ДЗМ»10.47619/2713-2617.zm.2025.v.6i1;83-97zdme-181Research ArticleОБЗОРЫREVIEWSКлючевые зарубежные инструменты оценки качества жизни пациентов с муковисцидозом: сравнительные свойства и характеристикиKey International Instruments for Assessing the Quality of Life in Patients with Cystic Fibrosis: Comparative Properties and Characteristicshttps://orcid.org/0000-0003-0745-9474АндреевД. А.AndreevD. A.

Андреев Дмитрий Анатольевич – канд. наук, ведущий научный сотрудник

115088, г. Москва, ул. Шарикоподшипниковская, д. 9 

Dmitry A. Andreev – Cand. Sci., Leading Researcher

9, Sharikopodshipnikovskaya ul., Moscow, 115088

andreevda@zdrav.mos.ruНаучно-исследовательский институт организации здравоохранения и медицинского менеджмента Департамента здравоохранения города МосквыРоссияResearch Institute for Healthcare Organization and Medical Management of Moscow Healthcare DepartmentRussian Federation202526022025618397Copyright © Андреев Д.А., 20252025Андреев Д.А.Andreev D.A.This work is licensed under a Creative Commons Attribution 4.0 License.https://www.city-healthcare.com/jour/article/view/181Введение

Введение. Улучшение благополучия пациентов с муковисцидозом посредством комплексного системного мониторинга качества жизни является одной из актуальных задач современного здравоохранения. Разработаны методы оценок, основанные на проведении анкетирования.

Цель исследования – систематизация сведений о свойствах ключевых зарубежных опросников качества жизни, частичный обзор примеров их использования.

Материалы и методы

Материалы и методы. Релевантные достоверные сведения для контент-анализа экстрагировали из библиографических баз PubMed и eLibrary. Отбирались информационные источники, посвященные вопросам изучения характеристик и аспектам применения соответствующих опросников.

Результаты и заключение

Результаты и заключение. В статье рассмотрены примеры популярных анкет, резюмированы ключевые параметры их сравнения, включая применимость. Специфические анкеты использовались в зарубежных исследованиях чаще других. В отечественных научных публикациях качество жизни при муковисцидозе оценивалось прежде всего с помощью общих тестов. Пересмотренный опросник по муковисцидозу (Cystic Fibrosis Questionnaire-Revised, CFQ-R) и анкета для оценки качества жизни при муковисцидозе (Cystic Fibrosis Quality of Life, CFQoL) оказались валидированными, наиболее распространенными специфическими инструментами с заметным потенциалом для их адаптации к условиям работы медицинских регистров за рубежом. По доступным на текущий момент сведениям варианты CFQ-R, техника научно обоснованного комбинирования разнородных линеек измерения исходов у пациентов (общих и специфических подходов) показывают преимущества в контексте пошагового поиска путей к широкому внедрению методов комплексных оценок в повседневную врачебную практику организаций отечественного здравоохранения.

Background

Background. Improving the well-being of patients with cystic fibrosis through comprehensive systematic monitoring of quality of life is one of the urgent tasks of modern healthcare. Assessment methods based on questionnaires have been developed.

Purpose

Purpose. To systematize information on the properties of key international quality of life questionnaires and to provide a partial review of use cases.

Materials and Methods

Materials and Methods. Relevant, reliable information for content analysis was extracted from the PubMed and eLibrary bibliographic databases. Materials studying the characteristics and application features of relevant questionnaires were included in the review.

Results and conclusion

Results and conclusion. The article reviews the most used quality of life questionnaires and summarizes key parameters of their comparison, including applicability. Specific questionnaires were used in international studies more often than others. In Russian scientific publications, quality of life in cystic fibrosis was primarily assessed using generic questionnaires. The Cystic Fibrosis Questionnaire-Revised (CFQ-R) and the Cystic Fibrosis Quality of Life (CFQoL) questionnaires have proven to be the most common, validated, specific instruments with significant potential for their adaptation to features of clinical registries abroad. According to currently available information, CFQ-R versions and the technique of scientifically based combination of heterogeneous patient outcome measurement scales (general and specific approaches) offer advantages in stepwise searching for ways to widely implement comprehensive assessment methods into routine clinical practice of Russian healthcare organizations.

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The authors declare that there are no conflicts of interest present.